Wednesday, November 30, 2011

Recent health adventures

Sorry I've been away. I've been VERY under the weather lately. I have some health issues that have cropped up and are preventing me from fully enjoying life and sharing myself with you on cam and in photos.

I'm not shy about my condition - I figure it's a great way to provide some education and to show that we aren't all "weird" lol... so onto all that stuff.

I was diagnosed with multiple sclerosis 8 years ago. It all started with some vision loss and pain behind my left eye - optic neuritis. After an MRI, spinal tap and some interesting brain function tests, I was fully diagnosed as 100% positively MS positive. Every test came back positive. I didn't fall in a single gray area.

After diagnosis, I had a mini pity party. My mother had primary progressive MS and lived only 10 years after her diagnosis. I knew other people with MS who were in wheelchairs or used walkers. It put a lot on my mind - fear, worry and all that negative stuff.

I jumped onto a treatment plan and hoped for the best. Six months later, I had another flare up. It happened again after six more months. It was an expected pattern for the first 3 years. Then I changed meds to a more controversial, newer, more convient med. I had a tiny flare up a year after starting that one. And then nothing. No flares. Even my existing symptoms started to improve. I didn't look sick anymore! Hell, I almost thought "maybe I don't have MS anymore" (not possible, but we're all allowed to dream at times).

Cue some dramatic life changes involving my employment status, etc., and I was left with no real insurance. With a condition like MS, you can't just buy normal insurance like everyone else. The new "unsurance" doesn't cover any MS therapies. I went off my treatment for a month and was hit with the WORST relapse/flare since I was diagnosed. It was disabiling, painful and horrible in every way.

What I didn't mention is the standard flareup treatment - steroids via IV. 1 gram of solumedrol, typically for 3 days. If you've ever had a coritsone shot, imaging getting 10 of them at once, daily! It's hardcore stuff.

Well, this flareup was so bad - lost vision, no balance and my speech was impacted - the doc did a 5-day run. The treatment felt deadly and I suffered with a LOAD of side effects.

One of the worst/riskiest side effects of that high a steroid dose is lung infection/pneumonia. Which I now have. It sucks. I feel like death. But I'm a trooper :)

Now, you might wonder why I don't just buy my MS therapy and hop back onto it. Well, it's the cost. I make OK money and can pay my bills. But the treatment I'm taking is $18,000 monthly. Yep, a new car every month. So I'm waiting on the financial assistance program from big Pharma to come through and save me on this one.

So now you know a lot more about me and why I'm a bit "different." I'm still a normal, kinky girl and I still 100% love sex, webcam work and am hoping to make the jump into magazines/web and/or porn. I want to do it all before my health is totally shot. At least that's my goal!

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